Understanding the Obstacles to Uptake of Intervention Programmes and Services for Persons with Dementia

​Background
Utilisation of intervention programmes and services for Persons with Dementia (PWD) has been generally modest despite the growing numbers. One reason had been the lack of knowledge about dementia and information on such services.

Objective
We sought to close this gap by providing caregivers with an information session about dementia and the importance and availability of related services. We explored the uptake of intervention programmes and services and reasons for non-uptake thereafter.

Methods
Two hundred and seventy-five PWD and caregiver dyads attended the Dyad Education and Empowerment Programme (DEEP). At the DEEP, while caregivers underwent an information session, PWD were assessed by a multidisciplinary team on their need and suitability of programmes and services such as daycare, cognitive engagement programmes and physical rehabilitation. The dyads then received individualized recommendations on the appropriate services, if any. Follow-up through medical records review and phone calls was conducted one month after DEEP to ascertain if the dyads had acted upon the recommendations and if not, what difficulties they encountered.

Results
One hundred and eleven PWD recevied recommendations, of which 40 (36.0%) agreed and enrolled in the services while 71 (64%) declined. Thematic analysis of the reasons for non-uptake revealed 3 themes: PWD-related factors (e.g. refusal, functional improvement or decline), caregiver related factors (adequacy of care at home, other care arrangements), and service-related factors (e.g. cost, timing).

Conclusion
Despite adequate information, there are other reasons for non-uptake of dementia-related services, some of which should be addressed to improve service updates and to provide better care for PWD.

SOURCE:
Current Alzheimer Research

DOI:
https://doi.org/10.2174/1567205017666200807192634

AUTHOR(S):
Lien HNH, Koh EJ, Yap PLK